5 comments about Death Be Not Proud (P.S.).

1. I was in the Barnes and Noble on Broadway and couldn't find "Death Be Not Proud." I was looking in the biography section and needless to say I was surprised on not finding it. I called an older clerk over and he looked too. He knew the book and he knew Johnny's story. He, too, was shocked.
   We went to the computer and found out that it was classified as Biography, but as "Literature."
   That started a conversation between the clerk and me. I told him that I just got back from Ferncliff Cemetery in Hartsdale, NY and seen Johnny's grave. I wanted to buy a copy of the book as a remembrance. He took a break and we had an interesting and thoughtful conversation about it.
   More than a biography, more than a piece of literature, Death Be Not Proud is a celebration of life which is also a celebration of one particular life. The book is written by Johnny's Dad and tells the story of the last year of Johnny's after he developed a brain tumor. The humanity and decency of his parents, his doctors, but mostly, Johnny comes through on every page.
   I was reading a critique by someone who thought that the book was pablum and a failure. They just don't get it. Johnny the whole time he is dying is keeping everyone else's spirits up. There can be no greater act of selflessness, than cheering up those who love you while you fight the good fight, even when you know that you aren't going to win. I think Johnny knew he was dying from the beginning and he dealt with it by "filling the unforgiving minute with 60 seconds worth of distance run."
   A few weeks before he died, Johnny received notification that he had been accepted by Harvard. Over a year of suffering but he still attain his greatest goal.
   Johnny Gunther was a man and, to me, "a man for all seasons."
   I know that it is highly unlikely, but I wish everyone who faced death had a father, brother, sister, mother or friend like Johnny's Dad. Thanks to John Gunther Sr., Johnny will live forever.
   And that is only right.



2. My Mom had me read this old classic when I was about 10, only the book was not all that "old" then. I've reread it several times, and introduced my two kids to it at a young age, though certainly not at 10. This is WAY too heavy for the average youngster; fortunately, I've got pretty good reading ability.
   
   John Gunther was a well-known author and journalist of the 1930's thru the 60's, famous for his "Inside" books; in April, 1946, his only child, Johnny, was diagnosed with a malignant brain tumor....he lived 15 months, most of it miserable, with small doses of hope thrown in. Gunther and his ex-wife, Frances, joined forces and did all that could have been done.
   
   This is the story of Johnny's courage and determination. No child is as great as Gunther paints his son, but a father can be forgiven. The events surrounding Johnny's high school graduation somehow make the fight worth it. That Johnny fought without the comforts of religious faith is, of course, tragic...still, he fought.
   
   An excellent picture is given of cancer treatment in the late 1940's, with introduction to Wilder Penfield, and other grand master neurosurgeons of the day. Chemotherapy was in its very infancy; diagnostic imaging was far different, and often brutal, with CAT scans and the MRI far in the future. We get to meet Max Gerson, and his controversial diet; I believe it's still in use. Cancer treatment is much different now, and the results for many types of tumors much better, but one irony is that the prognosis of glioblastoma multiforme is essentially what it was 60 years ago. And radiation therapy and neurosurgery are still rough.
   
   My Mom was right about one thing; this book is still around long after John Gunther's other work is dated, and forgotten. A father shared his grief...I forgive him his excesses, and still recommend the book.



3. A journalist and occasional novelist, John J. Gunther (1901-1970)was best known for the series of geo-political books he wrote during the 1930s and 1940s; today, however, he is best recalled for DEATH BE NOT PROUD. Published in 1949 and subtitled "A Memoir," it is a short work describing the final months of son Johnny Gunther, who died of a cancerous brain tumor in the late 1940s. Over the years many people have recommended this book to me, describing it as poetic in style, deeply touching in story, philosophical in content. Having at last read the work, I find the descriptions of it largely inaccurate and myself sharply unimpressed.
   
   To hear his father tell it, Johnny Gunther was an entity without flaw, a seventeen year old who was charming in his shyness, brilliant beyond his years, corresponding with Einstein even as he bemoaned his lack of skill at sports, the perfect child, a paragon beyond paragons who endured great suffering with a smile. While I can easily accept the brilliance and integrity and strength of character--such people do exist--the portrait quickly becomes cloying; Gunther elevates Johnny to the level of plaster saint and it is tiresome in the extreme.
   
   Gunther's prose is not in the least poetic; it is in fact the workman-like writing of the journalist he was. As for philosophical tone, this seems to consist of asking the time-honored questions about life and death and little more. In the end, DEATH BE NOT PROUD is the emotional purging of a grief-stricken parent who considers his loss to be unique instead of universal and therefore lacks the scope that one would really wish of this sort of memoir. Recommended, but primarily for the details it offers of the way in which cancer patients were treated in this era.
   
   GFT, Amazon Reviewer



4. "Death Be Not Proud" could have been the worst book ever written. Consider: John Gunther, Jr. loses his only son to a brain tumor in 1947, when the boy is just 17. And Johnny was no ordinary boy --- he was brilliant, caring, funny. The kind of kid about whom, after his death, people say, "He was loved by everyone he ever met."
   
   And that's just the summary. In fact, this kid was off the charts. He did original thinking in mathematics and wrote to Einstein --- and Einstein wrote back to encourage him. Unable to attend his boarding school because of his tumor, he got all his work done, aced his college admissions tests and would have gone to Harvard had he lived. And, through his 15-month ordeal of operations and treatments and diets and doctors and hope and despair, he never showed his parents how much he was afraid.
   
   Here's how amazing: When his surgeon told Johnny he had a brain tumor, his immediate response was "Do my parents know this? How shall we break it to them?"
   
   Imagine having a kid like that. Your only kid. And then sitting down and typing 150 pages about him.
   
   Only the geezers among you will recognize the author, but John Gunther was, in his day, a megastar journalist. Just after World War II, he published a book called "Inside Europe," and it was so successful he went on to write a series of "Inside" books. His novels flopped, but no matter. He was a born journalist --- he knew how to tell a story with style and economy.
   
   And "Death Be Not Proud" is the proof.
   
   "Johnny came home for the Christmas holiday in 1945, and he looked fit and fine." That's the first sentence of Chapter One, and it's a model. You know the boy is going to die. You know you're in for an emotional wringer. But you also know this father is going to serve it up straight, adult to adult --- he's inviting you to rise to his level.
   
   Big ideas? They're offered as sparingly as adverbs: "What I am trying to tell, however fumblingly and inadequately, is the story of a gallant fight for life, against the most hopeless odds, that should convey a relevance, a message, a lesson perhaps, to anyone who has ever faced ill health." What he doesn't need to say: That's you, dear reader, that's all of you, later if not today.
   
   This is the story of an emergency --- can the Gunthers find a cure for the tumor before it takes their son? --- and so the writing is, correctly, terse. Over this non-fiction medical thriller Gunther lays a story just as exciting: Johnny's effort to preserve his intellect, to make his mind triumph over his body.
   
   Of course there is no hope. Of course --- cruelly --- Johnny gets better. Several times. Only to relapse. Each time, Gunther just lays it out. You can feel him fraying as he writes, reliving how he frayed as he lived it. But he didn't crack then and so, if only for accuracy, he won't crack now.
   
   There is a scene in this book that should be required reading for everyone who ever has to write. It occurs at the end, when Johnny leaves his bed in New York to attend graduation at Deerfield Academy in Western Massachusetts. He's desperately ill --- he'll die just eight days later --- but he's determined to walk into chapel with his class and grasp his diploma in his left hand, just like his friends.. Gunther takes you through that walk, step by step, the chapel rocking with cheers --- good luck forgetting those pages.
   
   And then the end. The doctors are --- let Gunther have this metaphor --- "helpless flies now, climbing across the granite face of death." The world contracts. Now it's mother, father, son, in the saddest of scenes:
   
   "Johnny died at 11:02 P.M. Frances reached for him through the ugly, transparent, raincoat-like curtain of the oxygen machine. I felt his arms, cupping my hands around them, and the warmth gradually left them, receding very slowly upward from his hands. For a long time some warmth remained. Then little by little the life-color left his face, his lips became blue, and his hands were cold. What is life? It departs covertly. Like a thief, Death took him."
   
   An epilogue follows, but that's it, really. What can I say? Emotion doesn't come cleaner. You could throw a coin against those sentences and it would bounce back --- there's not a weak thought, an excess word.
   
   "Death Be Not Proud" was published in 1949. It isn't likely to go out of print any time soon. The saga of a boy dying? Sure, it grabs you and holds you. But that's because the broken, grieving man who wrote it was so professional he got out of the way and just... told the story.



5. Death Be Not Proud is a story written by John Gunther about his son, Johnny Gunther, who developed a brain tumor when he was just the young age of seventeen. Throughout the time of Johnny's months with his tumor, his professors at Deerfield Academy, friends, and family are impressed by his courage and patience through the worst times. From the time when Johnny first finds out about his illness, and the likelihood that it would never be cured, Johnny has the strength and courage to go on with his studies and act as if his illness is not affecting him, even if the tumor is worsening. This book shows the struggles and the hardships of a family and their son, who is "slowly being taken by Death," (Johnny's mother, Frances Gunther) while maintaining a positive outlook. Overall, the book was fantastically written and the father and the author, captures every moment of this time in Johnny's life. The book is almost like a series of pictures. John describes everything with such rich detail that I feel that everything could be expressed in a series of photographs.
   John Gunther writes "Johnny died at 11:02 P.M. Frances reached for him through the ugly, transparent, raincoat-like curtain of the oxygen machine. I felt his arms, cupping my hands around them, and the warmth gradually left them, receding very slowly upward from his hands. For a long time some warmth remained. Then little by little the life-color left his face, his lips became blue, and his hands were cold. What is life? It departs covertly. Like a thief, Death took him." This quote shows how much Johnny meant to his family, and later letters sent to his parents showed that the accomplishments Johnny made while he was sick, would surely never be forgotten by the ones he knew and loved with all his heart.
   After reading this story, I found myself contemplating the thought of Death stealing me or one I love away. Johnny Gunther not only gives me the strength to go on with life if you loose someone you love but also has become my hero. Hearing about the challenges he faced, and how much of an inspiration he was, I believe that there is no other way to die; to be at peace knowing the your loved ones are safe, and will go on remembering you.

5 comments about Crashing Through: A True Story of Risk, Adventure, and the Man Who Dared to See.

1. What would you do if you had been blind since you were three years old, and forty-two years later an ophthalmologist told you that there was a new form of stem cell surgery that could restore your vision? Would you do it? If you had never seen your children and spouse, and this new procedure could give you a chance to see them, would you take the chance? Does the question sound like an easy one to answer? What if you were happy with your life, even doing such activities as downhill skiing, and hiking alone in the woods, and you were told that there were some possible serious risks to the procedure? After the surgery you may find that it is difficult to adjust to the new sight, your sight may not allow you to see in a normal way, and you could again loose your sight at any time. Even more worrisome is that the drug that you would have to take was highly toxic and could possible cause cancer, would the risk be worth it? These are all things that Michael May had to think about as he pondered the idea, should he try this new procedure? I won't spoil the book for you by telling you how things turn out for May, but as you read this book, you will experience his struggles, his highs, and his disappointments. This is a fascinating true story, that also taught me things about sight that I had never known or thought much about before.



2. I really wanted to like this book, but Crashing Through turned into drudgery about half way through the story. The story is about Mike May, a blind man from a very young age, and his decision to have a surgery that allows him to see again. Mike's whole life is portrayed, and while it is interesting, it is not altogether fascinating. What is really compelling is what will happen to Mike after he has the surgery. Unfortunately, it is precisely at this moment that the book lost its appeal for me. The author quickly turns to describing the minutiae of May's daily life and what it's like to see ordinary things for the first time. After reading page after page of this, I finally gave up and stopped reading.



3. The disturbing image of the youthful Michael May running blind and crashing into schoolyard goalposts remained with me throughout my reading of this book. I was disappointed by the presentation and was not all that enamoured of the protagonist himself. Make no mistake, his sporting achievements were impressive. However, his incessant bragging about his attractive wife could only make me smirk at the irony of a blind man obsessed with female pulchritude. Using his new eyesight to leer at the girls walking past a local coffeeshop was just plain juvenile! Yes it's true he never got a chance to do this during his immature teenager years, but still. The book was dull and boring when I had expected so much more; the writing was pedestrian and cliched. This could have been so much better. The most meaningful part of the biography was May's struggle to achieve Olympic records in downhill skiing. He seems to have dared so much more before he "dared to see".



4. You're unlikely to come across another story like this any time soon. Kurson delivers the story of Mike May, one of only 20 cases in recorded history of a person losing sight in early childhood only to recover vision as an adult.
   
   In his early forties, May lives an active life as a fully fuctioning professional and family man when a chance encounter with an optometrist affords him the opportunity to try a rare, cutting-edge procedure to regain vision. The surgeries are a success and May sees his children and wife for the first time.
   
   Even more fascinating is May's subsequent struggle to adjust to this new way of living. He sees colors and can follow motion normally, but the details of vision (that Kurson tells us we process and learn in early childhood) aren't there. Seeing for him is like every moment try to speak a foreign language - it's exhausting and painstaking work even for a man so doggedly determined as May.
   
   Kurson's use of language is as brilliant as the story itself. He seemlessly guides us from a way of living without our primary sense to the brilliance of recovering it in adulthood.



5. Sherlock Holmes said it best and first when he made his famous remark to Dr. Watson: "You see, Watson, but you do not perceive." That's exactly May's problem in this staggeringly entertaining and profound text. The act of seeing is simple. The art of perceiving what you see is deep, complex, and maybe mastered by very few. After 49 reviews there remains little else to add. My only problem is how do I find out the rest of the story - the book can only bring us up to 2006. Mr. and Mrs. May and Mr. Kurson: Go with God!

5 comments about Brilliant Madness: Living with Manic Depressive Illness.

1. Anna ( Patty Duke), is a great lady! This book, An excellent and sad look at what a bipolar person goes through with and without help, I*m so happy that there is a name and treatment for this very sad illness. Anna tells it like it is and does it with class! May God Bless Anna Duke!



2. Can someone please give this book to Britney Spears? I'm not joking. I first read this book about 9 years ago when I was studying psychology in college and it was always one of my very favorite books on this subject. Because Ms. Duke is able to speak to the reader in such simple (yet interesting) words. Except for the old-fashioned term "manic depressive illness" (according to the APA, the correct term is bipolar, which sounds way more PC) this book is totally on the money. Another great book I recommend is Undercurrents: A Life Beneath the Surface. In 2008 it seems rather common for celebrities to discuss their dementia, and anything else that the public wants to know. So it may seem hard to fathom that less than thirty years ago none of this was discussed publicly because it was considered "career suicide." But Patty Duke was the very first star who candidly discussed her own mental illness in her autobiography . In my eyes, she is a true shero.



3. Celebrities who come out about a physical or mental illness help us get past shame, but Patty Duke does a lot more in this autobiography where she alternates her memories with professionally written chapters about bipolar illness. As a mental health advocate, I recommend this book especially to give to people with the illness who aren't ready for technical or self-help books.



4. If you want to know some of the unbelieveable, unbearable pain and suffering of an un-treated manic-depressive, read this book. How Patty Duke lived to tell her story is a miracle. Thank God she finally found her way out of her madness She gives hope to her fellow sufferers. From the perspective of gut-wrenching pain just reading her account, the book works wonderfully. But as a narrative, I found it hard to follow. I felt jerked around from eposide to eposide. There didn't seem to be a timeline I could follow to know what happened, when. Also, it was very distracting to have to plow through the pages of medical, technical information that were dispersed throughout the book. Overall, it's a fine description of the illness, but frustrating to read.



5. I just finished this book, and I thought it was very readable and an excellent memoir describing issues related to bipolar. The honesty with which the book is written is commendable. I highly recommend it for anyone wishing to learn more about this disorder and how helpful appropriate treatment can be.

5 comments about Inconceivable: A Woman's Triumph over Despair and Statistics.

1. This book, is great !!! I read it in two days, I couldn't put it down is just what I needed to know, all I can say is that so far I lost wheight, my allergies are gone, my sadness and anxiety are better, no babies jet .. but I feel am getting closer to my miracle....



2. I wanted someone to connect with, someone who's been where I have, I suppose. While I felt for her and her husband, it's just her situation which didn't match with mine. I thought I would be reading about someone who went through IUIs, IUIs with meds and IVF cycles.
   The author is much older than me and has a specific situation with FSH levels. For most of us women in our thirties that's a non issue.
   The healthy diet and nutritional information sparked my interest however I still believe everything in moderation is key.
   If you're on a journey where male infertility is an issue or your on the IVF path, this is not for you.



3. I stumbled onto Julia's books and her website while browsing on Amazon. She had commented on someone else's book, and it brought me to read about her books and website. I am generally a slow reader and rarely finish a book. I started reading "Inconceivable" and found it an easy read and highly enjoyable! I carried this book every where I went and read, read and read. I finished it in one week! - which never happens for me. In general, we eat very healthy and organic, but this book, Julia's story, brought me to another level. It is soooo worth the reading! Now, I am almost halfway through "The Fertile Female" her second book, and again, am carrying it around with me every where I go! It's one of those books that you can sit down and really, really get into and you feel like you're right there in the story, too. I highly recommend BOTH of Julia's books. I've also ordered her Imagery CD and some Conference Tapes from her website Fertile Heart. They just arrived yesterday. I have not been struggling with infertility, but more "obstacles" in trying to conceive our second child. I've had a miscarriage and my second ectopic pregnancy this time around, meanwhile, I'm just getting older... now 42! So, anything I can do to preserve my fertility, and in general just be the healthiest I can be - is well worth doing. Besides all of that - I've just really, really, really enjoyed reading her books and following the exercises. They're very peaceful exercises - I LOVE IT!!!



4. I bought this for my sister-in-law, but since I'm a pregnancy/birth junkie I read it before sending it to her. I think it's a wonderful reminder that western docs do not know everything there is to know about fertility and infertility, but they tend to act like they do and present no alternatives.
   
   My sister-in-law just had her first baby a few months ago after 10 years of trying. The few years of Western fertility treatment did not work and she hadn't yet gotten around to the acupuncture I was urging her to get. It happened naturally after they came out to visit my hubby and daughter and me.



5. Although the author is struggling with secondary infertility she still is suffering, as we all are. I saw I was not alone in what I was feeling and she opened up my mind and heart through her journey. I found it very helpful and I read in 24 hours cover to cover.

5 comments about Pretending to Be Normal: Living With Asperger's Syndrome.

1. Pretending to Be Normal: Living With Asperger's Syndrome
   This book is must read for anyone dealing with Asperger's children, teens and young adults. L. Wiley's insights into her own responses and feelings enables a better understanding of the behaviors we see, and also insight into some of our goals, that may not be shared by those with whom we are working.



2. I have now read several books by adults with autism or aspergers. This is a good book to read if you want a better understanding of the autism spectrum and how it plays out in children who otherwise appear "normal". The author describes very well what life was like for her in high school and college. She also writes about her marriage and some of the challenges in that. I believe that this is the first book I have read that goes into that type of depth of close relationships. At the end of the book she has chapters such as organizing your home life, employment options and survival skills for college students. I will probably read those chapters again and in more depth when my son is older. I think that many of the suggestions would be helpful to someone on the AS.



3. An unbelievable book. I laughed, I cried...
   I learned more about my son, I learned more about myself.



4. I couldn't believe the resemblences I found in this book.
   At 51, I have been diagnosed with Asperger's Syndrome, as is my Son of 17.
   Liane Willey could be my twin, with all she went through. I wasn't too sure if I had written the book. Anyone needing validation should read this book. It covers growing in all aspects of Asperger's. Childhood "fits" and College idiosyncracies. A great read for any "Aspie"or anyone with a suspision of "Aspies". (Asperger's Syndrome)[[ASIN:1853027499 Pretending to Be Normal: Living With Asperger's Syndrome]



5. This was the first book on Asperger's Syndrome that I read. I loved it and still often go back to it and reread sections. It is very well-written, logical, engaging, and informative. I enjoy autobiographical books about people living with challenges and this one really holds my attention. I read it just before I was "officially" diagnosed with AS and I was so touched by what Liane shared and could identify with so much of it. It has really been a blessing to me. Pretending to Be Normal: Living With Asperger's Syndrome

5 comments about Letters to Sam: A Grandfather's Lessons on Love, Loss, and the Gifts of Life.

1. These inspiring letters about love, loss and the gifts of life are as jewels in the mud. They shine brightly with a humble, honest and profound wisdom that nurtures light within and beyond darkness. A compelling read you will want to share with friends and family.



2. The product is what I expected. It arrived on time and in the condition advertised.



3. Perhaps this is more a sharing than a review. My husband had Polio when he was 25 and for the next 51 years he was a quadraplegic who finished college and worked for 35 yrs. He read this book and commented, the book gave many insights as to what life is really like from a wheelchair and that we are all different. When he died suddenly two days after Christmas I purchased this book for every member of our family to read.
   Arlyce, his wife.



4. "When it gets dark enough, men see stars," according to Emerson. In irreducibly simple yet profound words, Dan Gottlieb shares the wisdom he has derived from living in a wheelchair, battling his own inner demons, and practicing psychology for the past 25 years. His loves, losses, and lessons are informed and inspired by the unique bond he shares with his grandson, Sam, who is also different--growing up with a diagnosis on the autism spectrum. I wish I had this book when my son was diagnosed with autism over 20 years ago. I am overjoyed that we have it now for "Letters to Sam" is a guide for the soul, much more than just another autism book, and a wonderful gift to families.
   --Robert A. Naseef, Ph.D., author of Special Children, Challenged Parents and co-editor Voices from the Spectrum.
   
   Voices from the Spectrum: Parents, Grandparents, Siblings, People With Autism, And Professionals Share Their Wisdom



5. I can honestly say, even as a voracious reader, that this is one of the best books I have ever read. Dan Gottlieb's wisdom, love, and compassion for his grandson, diagnosed with autism, are very evident in this loving collection of letters on all subjects of life. Paralyzed in a horrific accident as a young man, he is the most obvious role model for the boy in advising him on many important matters of living--love, loss, happiness, and most of all, being an individual and learning from life's experiences, no matter what they may be. Sam's diagnosis of autism makes the book all the more poignant, as Gottlieb realizes that the boy may not understand all that is said in the book, but the gesture of writing it shows that he believes in Sam's possible eventual ability to appreciate it.
   
   Without giving too much away, one particular letter that especially touched me was one in which Gottlieb (who is a therapist by profession) relates a story of counseling a young woman who is having serious life difficulties when he suddenly has an embarrassing accident with his urinary bag. In this recount, he admits to severe embarrassment and ultimate emotional connection with the girl, who shows him empathy and understanding even as she is in desperate need of it herself when she goes to him.
   
   This book is not about autism or living with disability. It's about living, loving, and learning how to continue on after disappointment, loss, and tragedy. Gottlieb's amazing courage and wisdom will benefit anyone who reads this great work. I think I know what I'm buying everyone for Christmas next year. :)

5 comments about The Lives They Left Behind: Suitcases from a State Hospital Attic.

1. Not one review before mine gave a score of "average". Folks either really like this book or absolutely hate it. The numerous errors and typos were easy to spot. The authors quickly established that they had "an axe to grind". But in most of their observations they were talking about institutional care of the past, rather than the current system. Not to say that events upon which they report aren't still happening. I do think the authors do a reasonable job of showing that a number of the cases upon which they report did not have a "wretched" before Willard. Examples such as "She is in a [private boarding] home and refused to leave after being ordered out and used vulgar and obscene language" seems pretty weak as justification for a lifetime of institutional commitment. And it does seem clear that the culture of the time resulted in very little timely research regarding the underlying reasons behind the patient's abnormalities. I do not share the view that these folks would have been upset with their stories being told, in fact with varying degrees, those that could think coherently would have probably welcomed it.



2. The book consists of a conundrum of stories, as deducted by the authors from the suitcase contents (!) and case notes of former long-term patients in a state mental health institution. The authors' agenda becomes clear after reading a few pages in this book - they do not approve of state mental health institutions, disqualify them as inhumane, and attempt to explain away the chronic and persistent mental health issues that led many patients to be admitted there in the first place as mere alternative lifestyles minimized and explained away by the treating 'traitors'. Religious delusions, for example, are termed as 'spiritual turmoil'.
   
   This is in no way a realistic picture of the mental health field. Reality is that some of our patients simply require long-term care. Period. A more reasonable take can be obtained from the new book by E.F. Torrey "The insanity offense" where a clear argument is made, backed by epidemiological data, that the closure (now lack) of long-term facilities, while well-intended by liberals - for issues of 'humanity' - and by conservatives for 'cost-considerations', has gone awry. There is in fact an unprecedented wave of mentally ill patients who now occupy our prison system, for example, or who bounce back and forth between acute hospitalizations and highly structured living situations.
   
   In essence, a very polemic ill-advised book, that fails to address the truly important issue we face: how to provide the best and most appropriate care for our most ill mental health patients. The authors strongly argue against structure, but fail to provide any alternatives whatsoever.



3. "The Lives They Left Behind: Suitcases from a State Hospital Attic" is a straightforward book about an ugly part of our history. Its power, however, is that it demands that we look at the here and now. By clearly and simply reconstructing what little CAN be reconstructed of the lives of souls forgotten in a huge mental institution the authors left me with a haunting question: where are we stashing and forgetting the troubled souls of this generation? The answer is to be found in our prisons, under our bridges, in isolated board and care homes ....... and?
   
   Darby Penney and Peter Stazny, in this book, in their museum exhibition, on the "suitcases" web-site and in displays and presentations around the country, have given back something of what was taken from the individuals who were committed and consigned to the anonymity of large institutions. It is up to us to see that the "taking" ends in whatever form it occurs.



4. This powerful book documents the lives of people who were marginalized and forgotten. The authors took the opportunity to honor, respectfully, the individuals who were locked away and treated as though they didn't matter. The case notes illustrate just how much the "professionals" refused to see beyond the diagnostic lens, to the real person facing extraordinary challenges.
   
   This is relevant today because it still happens today. Having worked as an advocate for people confined to state mental hospitals, I can testify that there is a disproportionate number of individuals of color, individuals who came from other countries, individuals whose culture and traditions differ from the accepted norm. Rather than recognizing trauma and helping survivors recover, we label people and drug them, often condemning them to a lifetime of disability. Even though we don't keep them in the hospital for the rest of their lives, many lives are wasted through overmedication, hopelessness, and learned helplessness. This constitutes institutionalization in the community. Penney and Stastny have done a great service to the people they memorialized in this book: they gave them a name and a story.



5. This is an eye-opening book of lives diverted or interrupted, many by mere social missteps which resulted in life-long incarceration (AKA "commitment"). The pathos is almost tangible, especially upon viewing the long-lost items harbored in dusty suitcases left behind in the state hospital attic. It reminded me of what I felt and imagined upon viewing the artifacts of passage on display at Ellis Island.
   
   The editing of this book is abyssmal. I had to resist taking pen in hand to suggest re-ordering of paragraphs and note corrections. That being said, the book is still a worthy and engrossing read.

No comments about Against Medical Advice: One Family's Struggle with an Agonizing Medical Mystery.

5 comments about Emergence: Labeled Autistic.

1. I enjoyed this book so much. As the mother of a daughter with aspergers and not knowing quite what to expect I hung on every word. Temple brought me into her world so beautifully. Even though no two people with autism are the same there are so many similarities. I took what I could use and still found interest in the things that didn't apply to my daughter. The world of autism has interested me since I was a child, Temple in her fun yet blunt way (so typical of aspergers!!) took me into her world. I devoured the book in a few hours. My entire family is now fighting over who gets to read the book next. Great book!!!



2. Anyone who has any contact with an autistic child should read this book. For everyone else, it is an education about this dreadful condition that has become a household word. Temple is one of those very rare people who was clearly certified as autistic, but has broken out of her cage well enough to communicate to the rest of us the inner feelings of an autistic person. Essentially, it is an autobiography detailing her hypersensitivity, temper outbursts, anxiety attacks and inability to function as a social being. Through the efforts of her mother, loving teachers, structured environments and her own doggedness, she has emerged well enough to become an acclaimed professional animal scientist.



3. With the recent success of the novel "The Curious Incedent of the Dog and the Night Time" - a novel written from an autistic's point of view - we should remember that this book, "Emergence," was the first autobiography written by an autistic. Quite literally, it was Temple Grandin, more than any other person, who brought autism into the spotlight and gave us the "insider's perspective."
   
   Before I go on, it should be noted that anyone reading this will be reading the story of a quite high-functioning autistic. Sadly, the majority of those diagnosed with full-blown autism will be worse off than she (even if they can use language), and that, after having seen her live a few times, I question whether she would have fit the diagnosis of Asperger's syndrome (very mild autism) better than "autism."
   
   That being said, this woman's life was obviously no walk in the park. Even if her autism is mild, this story is one of humungous triumph over towering obstacles. She recalls, for instance, how it was not until her elementary years that she was really able to use speech. Her middle school years are rushed over because, she says, they are simply too painful to recount. (She tells us that other students used to taunt her by calling her "tape recorder" because she would endlessly repeat phrases because she liked their sound. She tells us of her obsession, starting in high school, with walking through doors and her creation of a "squeeze chute" which would allow her to experience physical pressure against her skin in a way that would not overwhelm her senses.
   
   Sound unconventional? Welcome to the world of autism. Autism, for those who don't know, is a developmental disorder that affects one's sensory intake (often, sounds, smells, and tactile sensation can be overwhelming), expressive abillty (having trouble verbalizing thoughts and feelings), and impairing social "instincs" (those unwritten rules "neurotypicals" take for granted. Grandin's story is one of learning to deal with, and adjust to, all three of these impairments enough to function in the world as a "normal" person, which is something that, sadly, many autistics can never quite do.
   
   But Grandin is a firm believer that autism can be "cured" (the quotation marks are because I think she means "dealt with" or "adjusted to fit the world," rather than "cured." Towards that end, the introduction and epilogue of the book are deveoted to lessons on how to deal with autism which can be extrapolated from the book.
   
   Another reviewer mentioned that this is a book that can be read by teenager and adult alike. This is one of its greatest assets. Autistics, when they use language, tend to use very literal and direct language (autistics have trouble with things like metaphor). This book is concise, to the point, written in very simple language, and would be easily aceesible to a teenage. As I teach teenagers, some with autism, I am just waiting for the chance to have some of my autistic and Asperger's kids read this book, because I know they will be able to draw much inspiration from it.
   
   If you are at all concerned about autism, Asperger's syndrome, and how the autistic thinks, this is a must read. Grandin is candid about her failures and her sucesses. This is a book that will entertain, educate, and inspire you.



4. Good book if you are looking for a view on autism from someone who has had it.



5. I really liked the book. It offers great insights into the life of autistic children.

5 comments about Over My Head: A Doctor's Own Story of Head Injury from the Inside Looking Out.

1. I was told to Read the book Over My Head By Claudia L. Osborne. I Like Her Was in a Bad accident in which I also had a closed head Brain Injury. I was in a coma for over 7 weeks in late August of 2006. I would agree with the writers synopsis that all you want to do is get back to your old Self, To be the same personyou were and do the same things but so many things changed in that split second that it is not only better to forget the Who you were and to Start basically a new Life. It is the only way to look positivly and to go on with life a new. A lot of the things in life will stay the same and yet there are so many things that I can no longer do. I could Bitch and Moan and get on hating My New Life or I could accept what has happened, Thank God Daily that for what ever reason I was spared: that He has a plan for Me and I must look at the positive and not the negative. I make it a goal now to work on putting a smile on My face every day by the time I close my eyes and go to sleep. That is of course after I have thanked the Dear Lord For The things that I can still enjoy among those things are the greatest Family and Friends a person could have. You have to look at life as a whole New life; separate and different in so many ways from who You used to be, but The same in social aspects where things ar still the same.



2. I first read this book at the recommendation of my neuropsychologist following a closed-head injury 8 years ago. I think it saved my sanity! Closed-head injury can bring about a panoply of just plain WEIRD symptoms that can make the patient (and their family, for that matter) feel as if they're losing their mind. The insanity is explained by a doctor who went through the same experience after an accident. She talks about it in a very non-technical way and helps the patient and those around the patient understand what's happening, why, and that NO, you're not nuts!



3. I suffered a ruptured aneurysm this summer '07, and read this book while recovering from brain surgery. It prepared me for the worst regarding other's responses to my temporary slower mental functioning. The book also helped me to be more sensitive to other people in general regardless of whether an infirmity is obvious or not. I.e., people were very compassionate toward me when my head was shaved and my scalp was full of staples, but now that my hair has grown back and the staples have been removed, that sensitivity has disappeared even though I am still recovering and will be for a long time.
   
   I was inspired by Dr. Osborn's strength and her determination to overcome her deficits. I admire her for writing this book to help others in her situation. Because of this book, I knew to ask my neurologist about cognitive therapy and am now enrolled and working with a occupational/speech therapist.
   
   I don't recommend reading this book early in the recovery process if you have had any kind of brain injury. I did, and it caused severe depression to overcome me. For lighter, more humorous material about brain injury survivors' ordeals, I recommend Susie Becker's book, "I had Brain Surgery, What's Your Excuse?"



4. I have had Encephalitis twice, recieved rehabilitation in Occupational, Physical and Speech therapies, and currently work full-time, yet will forever be aware of my physical & mental limitations. In this book a doctor explains her acquired brain injury and the rehab process she and her famuly and friends dealt with, along with the positive strategies she has gained to deal with her life today. This book clearly clarified for me the diference between TBI and simple brain injury and brought to reality the fact that other people have dealt with similar rehab situations as myself & survived successfully! A must read I found hard to put down.



5. Osborn does what is virtually impossible. She translates the fog of a damaged brain's function into vignettes that an undamaged brain can comprehend.
   
   In her case, this translation is from experiences which were by definition wordless, disorganized, incomprehensible, frightening and often completely mindless to their opposites. The level of Dr. Osborn's skill in doing this may be best understood by readers who have some experience (as I do) in being with brain-injured people.
   
   Whether one appreciates Osborn's achievement in communicating the uncommunicable is unimportant. What is valuable is that she succeeds so well in giving us insight into the "being" of at a subset of the injured.
   
   Most of the incidents recorded in the book are too long to quote in illustration of my point. Their length is a necessary consequence of Osborn's wish to reveal her floundering. Nothing in her life was straightforward. A relatively short excerpt follows:
   
   BEGIN EXCERPT (page 33)
   
   "I left soon after for the bookstore, but with the force of old habit and despite Marcia's written reminder dangling from the dash, I drove directly to the hospital. And then home again. Three times.
   
   "It was noon when I drove out of the hospital parking lot for the third time, I was determined it wouldn't happen again.
   
   "Now, as I turned onto the main road, Marcia's note clutched in my hand, I chanted, "Book store, go to the bookstore.'
   
   "I was still saying it thirty minutes later as I turned into our driveway.
   
   "When I got into the house, I reread Marcia's note. Lord, the bookstore.
   
   "Well, I would definitely get the book tomorrow. Right now, I could still do the second item on her list - water the lawn."
   
   END EXCERPT (page 34)
   
   Needless to say, Osborn forgot to water the lawn.
   
   The book is also notable in illustrating the lack of insight (in regard to her limitations) that Osborn (as others) experienced for quite some time. Then, once insight was gained, she writes about her struggle with a sorrowed sense of lost self.
   
   One incident that helped to her to understand the scope of her lost abilities (which apparently were exceptional) is recorded on pages 205-206. She was not able perform even so "simple" a cognitive exercise as making a telephone call to obtain a patient's medical information.
   
   The book provides a generalized understanding of how rehabilitation is accomplished. This includes learning stratagems for partially replacing lost structural functions.
   
   BEGIN EXCERPT (page 145)
   
   "Now my notes ordered me to [begin italics] really look in the mirror. Hair combed? Teeth cleaned? Collar straight? Earrings match? Expression alert, smiling? [end italics] It began to make a difference."
   
   END EXCERPT
   
   For the most part, the rehab portions of the book are most useful for providing a patient's view of rehabilitation. "Over My Head" certainly does not provide an overview of rehabilitation techniques. Osborn does, however, include a concise review of the generalized deficits that rehab and therapy have to address.
   
   By the end of the book, Osborn manages to return to teaching medicine, but in a format and in situations where she can proceed more or less by rote and under controlled circumstances. Osborn emphasizes that adult brain injury generally imposes permanent limitations upon post-trauma performance. You will not be who you were. Part of the rehabilitation process requires coming to emotional grips with whom you have become.
   
   I recommend "Over My Head" without reservation. It will be of most value to people new to dealing with brain trauma. It also has worth for those of us who lost figurative pieces of ourselves, but do not have brain trauma to blame. The "coping with loss and less" element of the book has universal appeal.
   
   Throughout, Osborn shines as a human being.