5 comments about Send in the Idiots: Stories from the Other Side of Autism.

1. I really loved this book. It starts out good, and just gets better. Nazeer is a talented writer, and this is a polished work on a wide variety of fascinating topics. These topics include not only autism itself, but range from the nature of political discourse and its impact on the functioning of a healthy democracy all the way to the extent to which our tend to categorize many abilities as innate and in doing so deny the hard work that is always required to develop those abilities.
   
   It's rare to find a book that is this easy and absorbing to read, and yet where you so often find your thinking shifting subtly over and over as you absorb the ideas presented. I highly recommend it.



2. Nazeer says, "Autistic individuals find it difficult to develop intuition or empathy," and convincingly demonstrates that his experience of social interactions and certain kinds of frustration is very different from, well, my own anyway.
   
   But, his writing is brilliant, his metaphors are fresh and apt, he's engaging...this is one of those books that's worth reading just for the writing. But in this case that gives my prejudices a puzzle: If that's not intuition and empathy, what is it? A hard-won kind, perhaps, and in many ways better than the kind I take for granted. But that upsets my ideas of what good writing comes from.
   
   And in fact one of his chapters is about the common assumption that geniuses have it easy. The unthinking dismissal implied by saying that, he's gifted, he's smart, he's obsessed with the subject. Nazeer points out that there's still a hell of a lot of work in preparing for and executing any kind of great work. Still, looking back at Nazeer's own book, I wonder, can you create that kind of style, color, coherence and personality by... work?
   
   In one chapter he rants against a kind of falseness common in conversations. Although I'm tempted to correct his calling it falseness, the point isn't easy to make. Often conversations float above factualness and their substance is about themes, patterns, meta concerns and a kind of shared tacit evolving conspiracy, but I'm left with the uneasy feeling that that sense of substance is "just an intuition," as if I understand it even less than Nazeer does.
   
   Which is to say, I loved these bonus insights and paradoxes, especially when the ride to them was so comfortable and entertaining. I appreciated being allowed into the lives of these people, especially the author.



3. My son has a diagnosis on the autism spectrum and my bookshelf is overflowing with books about autism. Unlike another reviewer I did not find this book discouraging.
   This book gave me a wonderful insight into how it is for my son to learn the mechanics of communication that come intuatively to neurotypical people. And many times the mechanics are much more interesting to the author than the content of the conversation. For example he was told that his teacher had been assaulted by a parent. I was waiting for him to ask and share why this assault took place and what had happend to the parent and child but instead he went on about the conversation itself. I had to laugh because clearly very different aspects of that story were interesting to us and I appreciated that as an insight.
   This book reminded me of books I have read by people traveling back to their home to find their roots to explain who they are. What does it mean for him and his old classmates to have autism? What has it ment to their lives? Autism has put odds in their way but has also forced them to become deliberate and resourceful.
   
   So I guess if you are looking for a book that makes you see people with autism as overcoming all obstacles or being doomed or savants then this might not be your book. It is not a book offering knowledge on how to raise your autistic child. It is a book about a few people with autism who struggle and succed and fail much in the same and jet a different way as all of humanity.



4. Autism is a world like no other. My child was diagnosed at the age of 19 months and we have been living in that world for 3 1/2 years. I felt this book was a very interesting and insightful view to the 'inside' of Autism. I have spent these years trying (and succeeding) at understanding my own child's mind. When I could not find materials to help educate her, I made them myself. I proactively worked at educating my child. I have a website [...] where I have made available items that have successfully helped my child and other children with Autism.
   
   Understanding your child's mind is a wonderful tool for helping them. This was a good book to read and fast-reading book. I also gave me hope for my own child's quirky ways.



5. This book held a lot of promise for me. As the mother of a 7 year old son with autism, I was hoping to read about how these children started on the path of intervention and therapy at a young age, and had terrific outcomes. What I got was instead rather depressing. First, it is not an easy book to read. The author seems to get mired in side information, such as the use of the word "genius" for far too long, distracting from the stories of the lives of the characters.
   While I know my son will live with autism for his whole life, we always hold out hope that some of the behaviors that manifest in his place on the spectrum will be outgrown. That did not seem to be the case for some of the people in this book. I was very disturbed at Andre and his use of puppets as an adult. I fully understand that as an autisic person, he needs to use whatever strategies he can to cope, and I have no judgement on him. I can only keep working with my own child to try to lead him out of these behaviors.
   I would not recommend this book to parents of young autistic children. I think it has the ability to dash some of the hope we need to have.

5 comments about Passing for Normal: A Memoir of Compulsion.

1. Passing for normal gives the reader great insight on life with OCD and Tourette's. It talks about her very first tic to her treatment that she has today. Amy is very open about her problems in this outstanding memoir. I also have OCD and can relate to many of her stories. This book also gives hope to reader's.



2. This book was so incredibly interesting. I've read quite a few books on the subject of suffering from obsessive compulsive disorder and I have to say this was one of my favorites. Amy so honestly tells the stories of her childhood, the way she suffered from tourettes as well as OCD and went undiagnosed for years. Amy details such difficult subjects, her trials and tribulations, but often speaks humorously about her past. She takes dark subjects, and writes seriously, but keeps them from being too dark and weighty by keeping a humorous attitude about her whole situation.



3. Passing for Normal (by Amy S. Wilesky) Reader Review
   Reviewer: Kristina M. Emard from Lebanon, ME USA

   Amy is an awesome writer, she tends to skip around a little but her detail and thoughts and opinions about everything are just so selective and different. Too bad there weren°Øt more writers like her. She talks about her life and the things she had to deal with. She did very well in school even with her disabilities.

   Amy had a very rough up bringing dealing with her two disabilities (1) Tourette Syndrome which is a rare disease that is characterized by involuntary tics and by uncontrollable verbalization involving especially echolalia and the use of obscene language, (2) Obsessive Compulsive Disorder (OCD) is an anxiety disorder characterized by obsessions or compulsions having one or both is sufficient for the diagnosis. An obsession is a recurrent and intrusive thought, feeling, idea, or sensation. A compulsion is a conscious, recurrent pattern of behavior a person feels driven to perform. Amy didn°Øt even know she had the disorders until she was older. She had to deal with her family and friends who thought she was crazy. She does finally end up getting the strength to go see a doctor because she knows that something is wrong with her. She was diagnosed with OCD and Tourette Syndrome, so her doctor put her on Prozac and other medications.

   After, when she knew she had the disorders she had a hard time, and didn°Øt want people to say bad things or make fun of her because of her disabilities, so she kept them to herself. When Amy is at her group meeting she isolates herself, she says °?My main problem is this: I seriously questioned myself up to a group of people who wouldn°Øt or rather couldn°Øt accept my party line.°± When Amy says °? people who wouldn°Øt or couldn°Øt accept my party line°± she means, people wouldn°Øt accept her for her. She was afraid that people wouldn°Øt accept her.

   In group she met a man named Bryant. They shared many similarities, which built their strong relationship. When Amy moved and was able to start at a new school, she loved it! She made many new friends, who again didn°Øt know she had these disabilities. Her friends thought that the twitching and the need to touch everything was cool. Amy eventually becomes obsessed with her obsessions and compulsions.

   Amy goes to college at Vassar like her many other relatives, where her and her first boyfriend begin living together. She was afraid of relationships, afraid of getting hurt, and afraid of being touched, but most of all afraid of any sexual activity. She trusted Ben very much though.

   In the last chapter she sends a very strong message that includes the title of the book. °?The older I get the more arsenals I acquire, the better I get at keeping my secrets, sometimes overriding them, sometimes Passing for Normal.°±

   This book has an amazing twist in the end but I wont spoil it for you. It is a great book for any reader that can follow flash backs and such. She uses great detail and amazing thoughts and opinions. She is a great writer.




4. I thought it was a really good book.

   I think that overall my experience with Asperger's syndrome (AS)has been more traumatic than hers has been with Tourette's, still, I think it's an important book. "Passing for normal" is something I'm trying to do all the time when I am with people.

   My only criticism is that she uses "like autistic" as a description of some of her behaviors and implies that it's a BAD thing to act autistic. It sort of feels like a put-down to me, but I don't think she intended autistic people to read her book and feel that way.

   It's amazing at the overlapping issues that Tourette's has with AS (some people have both), but they don't have any intrisic problem with making friends or understand typical motivations, as she shows.

   I thought her description of her relationship with her father was really interesting.




5. This memoir read like an article that was stretched out into an entire book. It was not a particularly interesting memoir or a good book on the topic of OCD or Tourette's. It was long-winded, obvious, and stale.

4 comments about Conquering Stroke: How I Fought My Way Back and How You Can Too.

1. My father had a stroke three months ago. I was desperate to find information regarding strokes - not only for my father but also for my mother - his primary caregiver. My father is unable to read, speak or walk but is able to understand everything that's going on around him. I began reading Valerie's book to him and the way he paid attention was astounding! It was as if he wanted to say, "That's how I feel!" It was important for him to know that someone else has been in his exact situation before and that we knew what he was going through. He also needed to know that, through sheer determination and will power, he too will be able to walk and talk again. At the end of each chapter my mother and I would read the Resources section together. In a sea of confusion and frustration it was great to find such a wonderful and inspirational book to help us get through this most traumatic time in our lives. I would recommend Valerie's book for, not only the stroke patient, but also friends and family.



2. This is an excellent "how to" manual for overcoming the debilitating effects of stroke, not only for the survivor, but the survivors' caregivers, family and rehabilitation team! If you're wanting complemetary medicine as an adjunct to the standard medical route, this is a "must have" book! Valerie is not only a great story-teller, but humorous in her approach to life and its pitfalls. She knows from the inside how a person must fight this disease, and is able to share it intelligently and step-by-step in an easy-to-read format.
   This book should be in every home!!!



3. As a stroke survivor myself, I am thrilled with this very informative, inspirational, moving account of Valerie Greene's journey. What an incredible amount of work and heart have gone into this long awaited account of her triumphs over a catastrophic event in her very young years and what maturity and obvious study and hard work have gone into her writing of this book. The information supplied at the end of each chapter is invaluable! I've read a lot since having my stroke in July of 2000, but never has so much been provided in one account. I highly recommend this for any and all people who have in any way been touched by a stroke and for the caregivers who are the heart of encouraging the survivors as they continue along their journey with new and different goals, yet hope for a bright tomorrow!



4. This book is both inspirational and confrontational! Greene's story graphically records the onset of her stroke and how she wrestled with the effects of stroke during the early days -- but then takes us along on her uphill battle and ultimate recovery from one of the most severe forms of stroke. She went from defeat to triumph and gives details as to how we all can do it, too. I also appreciated, as a caregiver, the way she confronted the issues that concern us who must fend for those who are yet recovering. A must read for everyone, because this illness is a plague on our culture.

5 comments about At the Will of the Body: Reflections on Illness.

1. I recommend this book to my patients all the time. My own copy is almost completely highlighted. Dr. Frank gives such insight into his own patient experience and from a medical sociologist's perspective!
   
   Abby Caplin, MD, MA, San Francisco, CA



2. For anyone who is ill or anyone who is accompanying someone else on this journey, this book is invaluable. Richly illuminating and enlightening about what it means to be facing a life threatening illness. It is enormously helpful and reassuring to read of someone facing this head on without the current and dismissive "just have a positive attitude". it is engrossing and a life changing book. I cannot recommend highly enough.



3. Arthur W. Frank's book, At the Will of the Body: Reflections on Illness, is a pilgrimage through the author's struggle with a heart attack and cancer. His experiences, insights, treatments, along with his wife's support are by no means examples of the average person's struggle with illnesses. Frank, a college professor, comes across as a self-centered elitest and as a patient who was critical of his health care. Upon reflection, I am amazed by his wife's dedication to him as he progressed through his illnesses, especially cancer.



4. I have helped train family practice physicians and I have used the play "W;T" to try and sensitize young physicians to the viewpoint of the patient. I was asked to read this book for a graduate course in spirituality and healing called: Suffering and Hope. I found it even better than "W;T" for training purposes. I think it should be required reading for all medical students and residents. Physicians are much more than just technicians trained to "fix" bodies. The viewpoint of the author was most helpful in suggesting ways to approach a very difficult situation. I have ordered copies for friends who are suffering from cancer that it may help them on their journey!



5. This was one of the best books I have read in the course of my dissertation work. I'd say it is a must read for anyone in the health care profession, as well as patients battling chronic symptoms. The book is a reminder that we need to remember the PERSON who is the patient.

5 comments about Planet of the Blind.

1. Stephen Kuusisto, the author of the memor "Planet of the Blind," is a poet. You can hear it in every word he writes.
   
   His moving memoir focuses on being legally blind and on the challenges he faced every single day trying to pretend he was a normal, "seeing" person. Along the way, you watch him grow up from an isolated, awkward child to a sensitive and extremely determined individual, one who lived in constant fear of being labled not normal, yet whose refusal to get help made everyday living a challenge to his own survival. At the end, he finally gains independence and normalcy in the form of a guide dog. It is a moment that brought me to tears.
   
   I thoroughly enjoyed reading this well-written and inspiring memoir, which does read like a poem. It took me just a few hours to read finish it, it was so engrossing. It also opened my eyes to the world of the blind, a world I had never really considered before.
   
   Thank you, Mr. Kuusisto, for sharing your story.



2. When I picked up this book, I was expecting an autobiography, a memoir of a blind person. I've always wondered how a blind person "sees" the world, so I was curious to read the book. What I got was something much more than a non-fictional account. The prose is absolutely striking, poetic, full of rich vivid metaphors. It inspired tears, and laughter, and rage, and awe in me at different points in the book.
   
   This book is more than a non-fictional autobiography. It's a work of high literature. You will be enriched after having read it.



3. I was reccommended to read Planet of The Blind due to my interest in writing stories about people who had disabilities and about by own disablility for I'm visually impaired myself and I have an interest in writing. So I read Steven Kuusisto's book Planet of the Blind and found it very facinating and inspiring! I highly reccomend it! I'd love to know what is he doing now and is he still writing and speaking of the book?



4. As a legally blind person, who had totally blind parents, this vividly written book went a long way in helping me come to terms with my own situation. Like Stephen, for years I was in denial about my own limited vision and tried, successfully for a time, to "pass" as fully sighted. This is no longer possible and I have to face my own limitations head on, as Stephen finally does.

   I recommend this book to anyone who would like to understand what living on the "Planet of the Blind" is really like, and for anyone who enjoys beautiful writing.




5. I read Stephen's book late into the night and then got up and read more in the morning. The book not only brought me new understanding of the world of blindness, it spoke intimately of the journey of self-acceptance. Stephen's story is threaded through with grace, and his language is musical. A deeply spiritual memoir; you will finish it changed.

5 comments about GIMP: The Story Behind the Star of Murderball.

1. The product was great and Woody's book store communicated great through email about the purchase and ordering information. The only thing is the number of days that it took to ship was confusing; I thought it would get to me sooner, but what the number of days meant was when it would be shipped as opposed to it arriving to me.



2. Sometimes, people who have been "handicapped" in some manner end up withdrawing into themselves. A few of them are downright miserable. Mad at the world for being stuck in the situation they're in... the best they can hope for (because they're depressing to be around) is to have people feel sorry for them.
   
   Mark Zupan (who, hopefully, you know from the astoundingly-good, and deserved-to-win-the-Oscar documentary, MURDERBALL), is NOT one of those people. He doesn't WANT anyone to feel sorry for him. (In fact, he doesn't even want to be seen as a "role model," or an "inspiration," though [sorry Mark!], to a lot of people, he is.)
   
   Mark was an athletic, fun-loving 18-year-old, having a blast in South Florida when everything he knew changed in an instant. Sleeping off a night of heavy partying in the back of his buddy Chris Igoe's parked pickup, he had no clue when his friend got in and (also drunk) drove off. Not too long thereafter, Igoe swerved off the road and Mark ended up flying out of the truck-bed, over a fence, and into some dense foliage overhanging a small lake. (Igoe had no idea Mark was in the truck bed, so when the police came, they never looked for him.)
   
   Mark regained consciousness, only to find himself unable to move (he didn't know it yet, but he was paralyzed from the neck down), hanging upside-down from a branch with his nose just inches from the water... and getting closer by the moment. He hung there for 14 hours, before a workman heard him yelling for help.
   
   And that's just the START of the story!
   
   In the years that followed, he has not only become one of the star players of the sport known as Quad Rugby (a.k.a. Murderball), his attitude about his "situation" (whether he likes it or not!) has helped untold numbers of others* to better cope with their own situations.
   
   
   * I know of what I speak. My young and lovely wife has been in a wheelchair for several years due to Multiple Sclerosis. After seeing the movie MURDERBALL --and *especially* after meeting Zupan at a tournament, her attitude went from "good" to fantastic. She's no longer "the girl in the wheelchair." She's simply my wife, who's fun to be around, and who's interested in doing the things she CAN do, rather than fretting about the things she can't.
   
   -Jonathan Sabin



3. A fast paced, gritty look into an Athlete's brush with death and the long road to recovery. If you are looking for the next inspiration for a cheesy After School Special on overcoming adversity...don't read this book. If you are looking for a well written, insightful look into how one guy copes with tragedy and disability, then this is an excellent read. To say Gimp has texture is an understatement thanks to its subject, Mark Zupan, a quadriplegic athlete who was made famous by the documentary Murder Ball. Gimp details how this proud, perhaps arrogant athlete dealt with a tragic accident that cost him the full use of his limbs thanks to drunken night that resulted in a brush with death and a debilitating spinal cord injury.
   
   Gimp does not spare us the details that are often left out of such stories including the uglier side of human emotion. The books subject faces Zupan's denial, doubt, guilt, fear, despair and loss as a result of his tragedy. While he ultimately comes to terms with his injury and recovery, it is not without some serious setbacks, some self inflicted. It is this part of writer Timothy Swanson's writing that really sets Gimp apart. He does not spare Zupan some hard looks into his darker nature to include arrogance, self indulgence and outright self destructiveness at times. If there is a villain in the book, it is Zupan himself and his own feelings of despair and anger. It is Swanson's description of Zupan's struggle with his own dark feelings and fears that give the story its power.
   
   The book is not without its own sense of humor and offers a dark amusement that Zupan has for the hand life has dealt him. Gimp deftly shows Zupan's outlook on life which is headstrong and confident but not without his fair share of hidden frailty in the face of a near death experience. In fact, the description of the actual accident that describes Zupan clinging to life, literally perhaps, is the book's strongest section. I have many friends who suffer from war wounds, especially brain injuries from IED's or "danger close" air strikes and I can say from personal experience that Gimp does an excellent job at looking at how proud warriors (in Gimp's case a world class athlete), deal with injury and recovery. I recommend this book without reservation to certainly anyone who knows someone who suffers from a disability or who has seen the documentary Murder Ball. The book has broader appeal to fans of sports writing as well since the book leaves no doubt that Zupan is an athlete. The fact that it is an easy read and has a brisk pace is no small feat given that other works of this genre tend to drag on, lack direction and are often burdened with sappy and clichéd, touchy-feely housewife book club nonsense. Zupan's force of will as described by Swanson carries the book along as does the suspense of how he will cope with each stage of his recovery and his entrance into the world of quad rugby aka Murder Ball. I thought it was a great read and recommend it without reservation.



4. This is a great book. Inspiring, entertaining, hilarious, and real. Mark doesn't pull any punches in this. It is not a self-pity book nor does it try to lecture the reader. It is a real account of someone who is very inspiring, yet doesn't pretend to be what he isn't.
   
   Once I started reading this I couldn't put it down. Awesome!!!



5. Mark Zupan makes you think about what you have, not what you do not have.
   
   He may be in a chair, but he is not handicap. Mark Zupan speak frankly and openly about his life before and after. He does not blame anyone for his injury.
   
   Make you think you life is O.K. and despite what happens you can survive and go on.
   
   Life is not so bad.

5 comments about Fall Down Laughing: How Squiggy Caught Multiple Sclerosis and Didn't Tell Nobody.

1. I felt better knowing that my fears with my illness are not mine alone.



2. The book is a quick read. Sometimes you feel very alone with MS. This book will help you feel better. And, it explains some of the MS symptoms that you are experiencing better than a medical text. It will put some words on your feelings.



3. I recently read this book, and I can't honestly say that I liked it. I too have been diagnosed with MS. I'm happy that Mr. Lander can find humor in his condition, however I find nothing he had to say not in the least bit funny.
   
   MS is a terrible diease that affects the Central Nervous System and there's nothing funny about that. Even the title of the book is seriously upsetting(How Squiggy caught Multiple Sclerosis and Didn't Tell Nobody). You can't catch MS, and to put that in print is misleading.
   
   I take my MS, the treatment for it, and all the symptoms very seriously. I have no desire to joke about them.
   
   Some of the information in his book were very informative and very much worth reading, however I believe his approach is less than ideal.



4. When my father finally told me he had MS (like David Lander, he kept it a secret), he suggested I read this book. The insight it gave me was priceless. Everyone will find their own path, but I can tell you that by sharing his experiences, Mr. Lander has helped me to be the best son (and friend) that I can be.



5. I just loved this book. It is a very quick read and very upbeat. For someone with MS or caring for someone with MS it is a story you can relate to. My husband was recently diagnosed with MS and has been very reluctant to read anything about the disease. I am going to have him read this book because while I whink it might confirm some of his fears, at the same time it does so in a positive manner.

5 comments about Rescuing Jeffrey: A Memoir.

1. this memoir was. What a an act of courage (the word bravery comes to mind also) that Jeffrey's father had at the time of his sons accident. It is just a short fast read but it packed full of insight. The hardback has a haunting picture on its cover..



2. When I first starting reading this book my frame of reference was Christopher Reeve's book "Still Me", about the struggles of facing quadriplegia after a tragic accident. I found Mr. Reeve's book inspiring in many ways and disheartening in other ways. Mr. Reeve was wealthy enough, and had multiple insurance and disability policies to fund a private clinic in his own home, with a full time staff of nurses, aides and therapists. In Mr. Galli's book, I was disheartened more than anything else. For a large part of the book he weighs the pros and cons of ending his son's life, not considering what his son would want to do. We're not talking about a brain dead person here, just how his son's new life of incapacity and dependence will impact his parents. Mr. Galli, in the irony of ironies, is an attorney, and is facing the prospect of hundreds of thousands, if not millions of dollars in costs caring for his son over his lifetime, and has nobody to sue. That seems to be a strong undercurrent in this book. Not just "Whose Life Is It Anyway?", but who pays for the continuance of this life in anyplace other than a lousy nursing home? This is really an issue for our society to deal with. I'm not sure if I want my taxes and health insurance costs to go up enough to cover paying $500,000. a year for every handicapped person who wants to remain at home to get all of the services that are required. And I was also very turned off by Mr. Galli's appeal for funds to pay for his son's care. Christopher Reeve solicited money for his foundation to do research and give out "quality of life" grants to paralyzed individuals, not for his personal use. Mr. Galli wants people to send in money to his son's trust fund to lighten the burden on himself.
   When I was a kid, and I am in my mid 50's, the phrase "accidents happen" was an accepted part of life. Today it seems that the accepted standard is that "negligence happens", and that there is almost always someone to sue.
   Jeffrey Galli had an extremely unfortunate accident. But I do believe that accidents happen, and I will continue to take care of my family members, and the Gallis, and their family and friends, should take care of theirs. And when you can no longer care for your son the same dreadful nursing homes will be available to you that the rest of us are stuck with for our loved ones.



3. This is a finely written memoir of a dreadful event -- a swimming accident that left the author's teenaged son paralyzed. The story takes us over the first days after the accident -- a time when the parents are trying to balance their son's options -- and the possibility of terminating life support. This is a very moving book, and I could not help but be profoundly impressed by the son, Jeffrey, along with his family and the network of supportive friends. I recommend this book without reservation. On another, perhaps less important note, I should mention that the author is also a very good writer. It is frequent in memoir books that I overlook style because of the content. But in this case, the content was very moving, as I said; the writing was very, very good. One last comment -- I cannot help but wonder if the negative reviewers finished the book. They might be surprised.



4. When my son was also injured in a diving accident in 1991 just pior to his 29th birthday, one of the counselors talked with me about the variances in each level of injury... and the variances within each level. This book relates totally ... and likewise, not at all. Such injuries do encompass such huge differences and yet still create huge bonds amongst SCI families and their friends. In 1991, I didn't have the availability of all the resources that can now be found so easily on the web... this improvement in availability is an additional tool in helping us learn and in helping us share/teach; alongside the medical improvements that increase the quality of life for those in wheelchairs. The wheelchair is what people see; the reality is so much more. As a mother, I appreciated reading the reactions from the other side of the parenting role... a father's honesty and truth... I know it was not easily exposed. Different angles of perception; same levels of love. Thank you, Jeffrey, as your father wrote... for sacrificing your privacy so he could tell the story.



5. When a tragedy such as the one Richard Galli experienced in his family occurs, the family is expected to nod in agreement at platitudes from well-meaning aquaintences such as , "At least he's still alive." But sometimes we're not truly glad our loved one is alive. Sometimes our love is so deep and the prognosis is so bad that we want to say, "NO!" But it is rare to have the courage to admit it if our society would be more cmfortable otherwise.

   Richard Galli obviously shared his feelings with rare honesty. He didn't tell a sappy story that would make us feel better. He told the truth. It is apparent that he didn't write for the popular commercial success, but for more personal and intimate reasons. Those who dare to read it with an open heart can benefit from his bravery in sharing his thoughts and feelings with no regard for what anyone not in his situation might think.

5 comments about Living in the Labyrinth: A Personal Journey Through the Maze of Alzheimer's.

1. This book was well done with frightening information about the dreadful disease of Alzheimer's. Unfortunately, the copyright is 1993 and I would love an update. There are new things that are helping with Alzheimer's every day. Every 72 seconds another person has been diganosed with Alzheimer's (according to Alzheimer's Desease Research)so we need more books like this that are more recent.



2. Thank you for your quick service and amazing availability. I have checked over half a dozen places for my new book and no one seems to carry it! I appreciate your speedy shipping as it comes in handy when I need something soon.



3. This is a magnificent addition to the small but growing oeuvre of those telling it like it is from within the shadow of Alzheimer's. Unlike Kuhn's "Alzheimer's Early Stages" who offers a Prozac to those of us who defy his Polyannish view of a CRS' mental functioning without seeking insights from those who remain lucid and analytical and rational within, despite our infrequent "windows of clarity", McGowan tells it like it is for some of us: warts, fistulae, et al. She does not hold back from her anger, depression and increased libido. [Discretely, I have observed that the female party in an ALZ pairing, whether caregiver or ALZer, seems to be affected by ALZ as if it were a female aphrodasiac, whereas the male is threatened by his partner's increased "horniness." Studies of sexual activities in aging environments seems to confirm this casual observation, which appears psychological rather than physiological, i.e. it seems not related to the physical phenomena of erectile dysfunction, or loss of vaginal lubrication, but rather a soritin reward for coping with the stress of ALZ.

   McGowan's struggles with those who demanded that she surrender control over her completed opus are mirrored in our daily lives as our caregivers, facilitators, and M.S.W.'ers "command" that we
   that we surrender our remaining identities since these are an obstacle for those who "know what is best for us;" and regard disobedience as defiance by ADHD juveniles.

   McGowan's book could have used a considerate and conservative collaborator and/or editor to polish the rough diamond she has put forth, just as DeBaggio's "Losing My Mind" cries out for polishing, which refining Snyder's "Speaking Our Minds" exemplifies. But both McGowan and DeBaggio give us the raw data, from which we we middle stage ALZheimers desperately need so that we are not be alone nor terminally unique.

   Interstingly, McGowan justifiably claims credit for instigating an Alzheimer support group, where none existed [there are an abundance of groups and "Idiot's Guides" for caregivers, but these tend, like Alanon, to be pity pots of anger and resentment directed at those of us with middle stage Rapid Onset "Late Onset" diagnoses, who have not yet deteriorated like Iris Murdoch into vocal or literary aphasia although the communicating becomes more difficult as the Ah!HA!s of insight flee much too rapidly. [I do not envison heaven for those who forget that one must recall spelling in order to use a dictionary or word processer!]

   Like Strauss' "Speaking to Alzheimers", "Living in the Labyrinth" is an ideal guide of "Do's & Dont's for those who wish to communicate with us, without inflicting their own anger and resentment into us.

   A "Must Read" for ALZers, Caregivers, Facilitators, and others who do not have Closed Minds regarding those of us who assure them that there is "A Human Thinking Within" the quickly closing walls of outward communication, acknowledgement, and recognition.

   On the other hand, "cursed be those who have eyes and do not see, and ears which do not hear;" [Jeremiah & Ezekiel] vasecors et amens.




4. Living in the Labyrinth is one of the first books I read when I began researching Alzheimer's disease. It is a gripping account of Alzheimer's disease from the inside. I found myself reading the whole book in one sitting.



5. When I first began my zealous quest to understand the disease of Alzheimer's, I stumbled across this book. To this day, it remains the most influential book I've read for understanding stages 1-5. Written in first person, it provides a soul-revealing glimpse into the maze of AD as one woman shares her quest to deal with the loss of function and depression accompanying this stage of the journey. Years later, I still pick it up occassionally to reconnect.

5 comments about Like Sound Through Water : A Mother's Journey Through Auditory Processing Disorder.

1. I thought this book was a great read - I read it non-stop to the end. If the author were to write a second book updating her son's story, I would definitely read it. This is a compelling book for any parent not just those whose children have APD.
   
   In fact, I'm not sure that her son's APD is particularly typical. Her son clearly demonstrated language problems from the outset, whereas I believe many APD cases are quite subtle. So, like the other reviewers, I would say don't read this as a textbook for APD, but more as an interesting story of how one family dealt with their son's challenges.



2. The book was insightful, easy to read. I couldn't put it down. The book is written from the family's perspective as their child is identified with a disorder. It relates the family's stuggles for correct diagnosis, treatment and support. A must read for early childhood specialists who assess and work with young children with special needs.



3. Because I couldn't NOT find out how their journey turned out, I was up until midnight last night with Karen Foli, Ben, and their family. Besides being Every Mom, Foli is a solid thinker, a strong communicator, and a mystery writer. This book unfolds like a popular novel, so you stand right next to the protagonist as she unravels the issue of APD, finally getting diagnoses and treatment.
   This book is on my short list for young teachers, along with Freaks, Geeks and Asperger Syndrome: A User Guide to Adolescence, Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic,Change Your Brain, Change Your Life: The Breakthrough Program for Conquering Anxiety, Depression, Obsessiveness, Anger, and Impulsiveness, and Why Gender Matters: What Parents and Teachers Need to Know about the Emerging Science of Sex Differences. Like many of these books, Like Sound Though Water reflects how rapidly improving technology can and should change the way we teach. Like all of them, this book will help teachers empathize with families. APD can be very frustrating for everyone, including harried classroom teachers. When you've worn yourself out trying everything to hook a kid, it's easy to blame family or the kid himself. This book will help you keep your eyes open for other causes for classroom difficulties.
   Okay, now I'm going to get on my soapbox: I think one of the reasons I had to stay up so late reading this was that I was internally screaming "Someone get this kid to an audiologist!" I was totally not surprised that the first person to recognize processing problems was a lady who ran a little church basement kindergarten, and I firmly believe that if Foli had Ben in a public school first, the problem would have been identified sooner. Public school teachers are required to have more training and diversity in our student population is not just country of origin. We've seen more.
   Anyway, great book for all readers but especially parents, teachers, and medical folks.



4. My 3rd grade son was just diagnosed with auditory processing disorder and I found this book to be informative and a pleasure to read. My son's condition isn't as severe as the author's son's; however, I could identify with her frustrations before the diagnosis. The author brought up 2 new treatment strategies that I was unaware of-Fast ForWord and Earobics. I have already recommended this book to friends and would highly recommend it to anyone interested in APD.



5. I find the events surrounding Ben's development tragic. With a psychiatrist father and nurse mother, they ignored SIGNIFICANT signs. Toe walking, unintelligable speech at THREE, severe separation anxiety, textural issues with food, sensory overload. This book makes the case for effective early intervention, being an effective advocate for your child (stop denying and placing blame on the husband) and finding the right resources. Newsflash: APD is NOT new and the lack of evaluators and educators who were unfamiliar with this learning disability is alarming.
   This book was self-indulgent. One got tired of reading the distances traveled to get Ben evaluated and help. If that's what it takes when you have a special needs child, then that's what you do. Glad I got it from the library and didn't pay.